Hey everyone, this is Daniel. If you could please pause your tumbling for a minute to read this post I would really appreciate as would Daniel, his parents and friends. This is his story.
Daniel was born premature with a very rare kidney disease which was found in-utero. After the emergency C-section, which I was told not to have because he would not survive, his prognosis was still very bad. He has fought for every inch of ground he has gained in his short little 6 years of life. He has had countless surgeries. Touching on the major ones, at 7 months of age he went through a left nephrectomy in order to get his lungs to drop and be able to breathe with some ease. At 18 months Daniel’s father gave him a kidney. Daniel went through a right nephrectomy and a kidney transplant on 9-11-2006. Through no fault of his or our family, Daniel rejected his kidney on 8-7-2008. It was one of the worst days of our lives. Daniel coded several times, had allergic reactions to the anti-rejection medications and was forced on to hemo dialysis. The treatments in and of themselves almost killed him. Thank God we found PD dialysis. He will have been on PD dialysis for 2.5 years in October.
Because a portion of the original transplant surgery was left out of his first kidney transplant complications of his disease ruined his liver and exacerbated his spleen. Daniel needed a new liver urgently. He received a new liver on 2/6/2010 at Children’s of Pittsburgh. Unfortunately he was not able to receive the kidney and was placed back on hemo dialysis for 4 months. Those were very long 4 months. Once he was back on PD dialysis we came home and continue to wait for a kidney. While we wait, Daniel is suffering from lung complications, poor nutrition, for which he will be receiving a G tube in order to try and get him more nutrition and several other complications of not having a working kidney. He is receiving daily shots to try and get him to grow as the kidney controls growth. He is getting God awful huge weekly shots to help with his red blood cell reproduction as the kidney sends the signal for the marrow to reproduce the red blood cells.
Daniel just wants to be like normal 6 years old. No P. Dialysis catheter tube coming out of his body. No GI tube for nutrition. No more shots except for normal immunizations. He wants to play, run and eat like all the other kids in his class at school.
If you could please find it in your heart to help us save our little fighter and to help him be a “normal kid” we would be more than appreciative. Dani can accept an adult sized kidney. He has the space. Thank you.
I met Daniel last year when he was in my sisters Kindergarten class. Michelle, my sister, and Daniel were quick friends. He is the one of the nicest people you could ever hope to meet. He is sweet and funny and extremely intelligent and doesn’t complain at all about his condition or about all of the things he has to undergo day by day. I have never met a child, a person, anyone that has fought for life that wants to live with the vigor that Daniel does.
My mother considered donating her kidney, but she doesn’t match his blood type. I also considered donating my kidney but I am also not a match. We are asking for any help we can get. If you could all read this and reblog, spread the word, or just keep him in your prayers it would help him, his family, and all of us who have grown to love him a great deal.
If you wish to contact his mother here is her facebook.
Daniel has a website in which you can leave comments and offer donations.
Channel 7 covered Daniel’s story in this video and here is another video
Thank you for taking the time to read this.